Events & News
CRF Natalie's Wish Events
A Day of Hope – May 1, 2010
Our first Day of Hope gathering was an inspirational and informative day for over 70 family members and friends in the cystinosis community. Eight of the CRF-funded researchers presented cutting-edge research on the effects of cystinosis in the eyes, kidneys, muscles, and brain, plus updates on the delayed-release cysteamine and stem cell therapy. Read more here and view event photos here.
Natalie's Wish Event Raises $1.3 Million - April 30, 2010
The CRF raised $1.3 million at the ninth annual Natalie's Wish event on Friday, April 30th at the beautiful Balboa Bay Club in Newport Beach, CA. The celebratory event brought together 300 guests, including 17 families of children and adults with cystinosis. Read more here and view event photos here.
October 5, 2009 - 3rd Annual Fore A Cure Golf Tournament Raises $165,000 for cystinosis research.
Events for Researchers
April 8 & 9, 2010 - Irvine, CA - Second International Cystinosis Research Symposium
Spring 2010 Call for Research Proposals
CRF Partner Events
October 8, 2010 - Swing & Bling Event organized by Jenna & Patrick's Foundation of Hope
September 11, 2010 – 24 Hour Bike Relay, to benefit 24 Hours for Hank
September 24-26, 2010 - 6th International Cystinosis Congress
May 21, 2010 – Wine, Stein and Dine to benefit Tina’s Hope for a Cure
View More CRF Partner Events »
News
Newsletter Links
View the latest Natalie’s Wish Newsletters and CRF Science Reports »
Sign up for Star Facts, our monthly email newsletter, to hear more about these events and the most current research updates.
